What Matters to Families: Knowing Who We Are (2003)

Abstract

"Rebecca Lilly died at age 16 after a six-year battle with brain cancer. Rebecca's parents and siblings relate their relationships with the health care system and express needs and concerns often identified by families coping with the life-threatening illness of a child. This program is Part Two of Module 1: Engaging with Children and Families of the IPPC curriculum. Along with Parts Two and Three, "this video series presents the stories of three famlies describing their experiences with health care professionals and the health care system as they negotiate the difficult road through their child's life-threatening illness." Part Two is intended to be used with Module 1, Activity 3.