Disability or End-of-Life? Competing Narratives in Bioethics
Theoretical Medicine and Bioethics 2003; 24(6): 459-469
Bioethics, and indeed much ethical writing generally, makes its point through narratives. The religious parable no less than the medical teaching case uses a simple story to describe appropriate action or the application of a critical principle. While powerful, the telling story has limits. In this paper the authors describe a simple teaching case on "end-of-life" decision making that was ill received by its audience. The authors ill- received example, involving the disconnection of ventilation in a patient with ALS (Lou Gherig's Disease) was critiqued by audience members with long-term experience as ventilation users. In this case, the supposedly simple narrative of the presenters conflicted with the life histories of the audience. The lessons of this story, and the conflict that resulted, speak critically to the limits of simple teaching cases as well as the strengths of narrative analysis as a tool for the exploration of bioethical case histories.
Showing items related by title, author, creator and subject.
Kaufert, Joseph; Wiebe, Rhonda; Schwartz, Karen; Labine, Lisa; Lutfiyya, Zana Marie; Pearse, Catherine (2010-05)The way in which medical professionals engage in bioethical issues ultimately reflects the type of care such patients are likely to receive. It is therefore critical for doctors and other health care professionals to have ...
End-of-Life Decision Making Among Aboriginal Canadians: Interpretation, Mediation, and Discord in the Communication of "Bad News" Kaufert, Joseph M.; Putsch, Robert W.; Lavallee, Margaret (1999-03)
Reponse to "Difference and the Delivery of Healthcare" (Special Section) (CQ Vol 7, No 1): Mulitcultural Perspectives in Bioethics: End-of-Life Decisionmaking Koch, Tom; Braun, Kathryn; Pietsch, James H. (2000-01)