"Who Owns Your Poop? ": Insights Regarding the Intersection of Human Microbiome Research and the ELSI Aspects of Biobanking and Related Studies
Hawkins, Alice K
O'Doherty, Kieran C
BMC medical genomics 2011 October 7; 4: 72
While the social, ethical, and legal implications of biobanking and large scale data sharing are already complicated enough, they may be further compounded by research on the human microbiome.
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Structuring public engagement for effective input in policy development on human tissue biobanking. O'Doherty, Kieran C.; Hawkins, A. (2010)We begin with the premise that human tissue biobanking is associated with ethical ambiguities and regulatory uncertainty, and that public engagement is at least one important element in addressing such challenges. One is ...
O'Doherty, Kieran C; Burgess, Michael M; Edwards, Kelly; Gallagher, Richard P; Hawkins, Alice K; Kaye, Jane; McCaffrey, Veronica; Winickoff, David E (2011-08)Biobanks are increasingly hailed as powerful tools to advance health research. The social and ethical challenges associated with the implementation and operation of biobanks are equally well-documented. One of the proposed ...