Antiscience and Ethical Concerns Associated With Advocacy of Lyme Disease
Auwaerter, Paul G
Bakken, Johan S
Dattwyler, Raymond J
Dumler, J Stephen
Halperin, John J
Nadelman, Robert B
Shapiro, Eugene D
Sood, Sunil K
Steere, Allen C
Wormser, Gary P
The Lancet infectious diseases 2011 Sep; 11(9): 713-9
Advocacy for Lyme disease has become an increasingly important part of an antiscience movement that denies both the viral cause of AIDS and the benefits of vaccines and that supports unproven (sometimes dangerous) alternative medical treatments. Some activists portray Lyme disease, a geographically limited tick-borne infection, as a disease that is insidious, ubiquitous, difficult to diagnose, and almost incurable; they also propose that the disease causes mainly non-specific symptoms that can be treated only with long-term antibiotics and other unorthodox and unvalidated treatments. Similar to other antiscience groups, these advocates have created a pseudoscientific and alternative selection of practitioners, research, and publications and have coordinated public protests, accused opponents of both corruption and conspiracy, and spurred legislative efforts to subvert evidence-based medicine and peer-reviewed science. The relations and actions of some activists, medical practitioners, and commercial bodies involved in Lyme disease advocacy pose a threat to public health.
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Scientific Evidence and Best Patient Care Practices Should Guide the Ethics of Lyme Disease Activism Auwaerter, Paul G; Bakken, Johan S; Dattwyler, Raymond J; Dumler, J Stephen; Halperin, John J; McSweegan, Edward; Nadelman, Robert B; O'Connell, Susan; Sood, Sunil K; Weinstein, Arthur; Wormser, Gary P (2011-02)Johnson and Stricker published an opinion piece in the Journal of Medical Ethics presenting their perspective on the 2008 agreement between the Infectious Diseases Society of America (IDSA) and the Connecticut Attorney ...