Ethical and Policy Issues Raised by Heterozygote Carrier Identification and Predictive Genetic Testing of Adolescents
Ross, Lainie Friedman
Adolescent medicine: state of the art reviews 2011 Aug; 22(2): 251-64, ix
Current professional recommendations discourage health care providers from providing heterozygote carrier testing and predictive genetic testing for adult-onset conditions to minors. These recommendations are based on theoretical concerns that the harms outweigh the benefits. Although empirical data are scant, the emerging evidence suggests that the risks of harms are less than predicted and that there may be some significant benefits for testing adolescents, particularly when the adolescent and parent(s) agree. To ethically respond to requests for genetic testing of adolescents, pediatricians should evaluate the goals of testing, the familial implications of the results, and whose consent is needed.
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Ross, Lainie Friedman (2006-12)The main value of carrier detection in the general population is to determine reproductive risks. In this manuscript I examine the practice of providing carrier screening programs in the school setting. While the data show ...
Ross, Lainie Friedman (2002-09)There is a general consensus in the medical and medical ethics communities against predictive genetic testing of children for late onset conditions, but minimal consideration is given to predictive testing of asymptomatic ...