The California Prenatal Screening Program: "Options and Choices" Not "Coercion and Eugenics"
Flessel, Monica C
Lorey, Fred W
Genetics in medicine : official journal of the American College of Medical Genetics 2011 Aug; 13(8): 711-3
The California Prenatal Screening Program is designed to make prenatal screening available to the state's large and diverse population. The Program provides information to women which will allow them to make informed choices regarding prenatal screening and prenatal diagnosis. Since the Program's inception in 1986, women in California have had the option to participate in prenatal screening or to decline prenatal screening. The California Program offers prenatal diagnostic services to women whose screening tests indicate an increased risk for birth defects, including Down syndrome. Women can decline any or all of these follow-up services. Genetic counseling, diagnostic services, and the presentation of diagnostic results are performed by medical professionals (not State staff) who follow established guidelines for nondirective counseling. Program data clearly demonstrate that women in California have a wide range of options and make a wide range of choices regarding prenatal screening and prenatal diagnosis. California's comprehensive Prenatal Screening Program promotes optimal care for all women within all options and choices. The important and necessary communication among organizations and stakeholders involved in prenatal screening and diagnosis, and in related care for pregnant women and for people with Down syndrome, is not served by misrepresentation and inflammatory rhetoric.
Birth Defects; Coercion; Communication; Counseling; Diagnosis; Down Syndrome; Genetic Counseling; Guidelines; Nondirective Counseling; Organizations; Pregnant Women; Prenatal Diagnosis; Rhetoric; Risk; Stakeholders; Genetic Counseling / Prenatal Diagnosis; Genetic Screening / Genetic Testing; Eugenics; Health Care for Mentally Disabled Persons;
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