Responsive Care Management: Family Decision Makers in Advanced Cancer
Meeker, Mary Ann
The Journal of clinical ethics 2011 Summer; 22(2): 107-22
The purpose of this prospective study was to develop a grounded theory explaining the process that family decision makers use to make care decisions with or for a family member with advanced cancer. Adult surrogate decision makers were recruited for multiple interviews over the patient's care trajectory: 40 surrogates provided 80 semi-structured interviews. Analysis of these narratives revealed a process of responsive care management that is inclusive of, but not limited to, decision-making roles. Monitoring, buffering, and taking over comprise the three phases of the process. Decision making was embedded within the family member's broader relational and care responsibilities.
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Trusting Families: Responding to Mary Ann Meeker, "Responsive Care Management: Family Decision Makers in Advanced Cancer" Nelson, James Lindemann (2011-06)Mary Ann Meeker's article admirably reminds readers that family members are involved in--or "responsively manage"--the care of relatives with severe illness in ways that run considerably beyond the stereotypes at play in ...