Preconceptional Genetic Carrier Testing and the Commercial Offer Directly-to-Consumers
ten Kate, Leo P
Cornel, Martina C
Howard, Heidi C
Human reproduction (Oxford, England) 2011 May; 26(5): 972-7
Recently, a number of commercial companies are offering preconceptional carrier tests directly-to-consumers. This offer raises a number of concerns and issues above and beyond those encountered with preconceptional tests offered within the traditional health care setting. In order to bring some of these issues to light and to initiate dialogue on this topic, this article discusses the following issues: the current offer of preconceptional carrier tests (until the end of 2010) through online commercial companies; the implications for the informed consent procedure and the need for good information; the need for medical supervision and follow-up; and the appropriate use of existing resources. The article concludes with some reflections about the potential sustainability of the offer of preconceptional carrier tests directly-to-consumers.
Showing items related by title, author, creator and subject.
Three-month follow-up of Western and non-Western participants in a study on preconceptional ancestry-based carrier couple screening for cystic fibrosis and hemoglobinopathies in the Netherlands. Lakeman, Phillis; Plass, Anne Marie C.; Henneman, Lidewij; Bezemer, Pieter Dirk; Cornel, Martina C.; Ten Kate, Leo P. (2008-11)
Developing and optimizing a decisional instrument using self-reported ancestry for carrier screening in a multi-ethnic society Lakeman, Phillis; Henneman, Lidewij; Bezemer, Pieter Dirk; Cornel, Martina Cornelia; ten Kate, Leo Pieter (2006-08)
How should preconceptional cystic fibrosis carrier screening be provided? Opinions of potential providers and the target population Poppelaars, Francis A.M.; Henneman, Lidewij; Ader, Herman J.; Cornel, Martina C.; Hermens, Rosella P.M.G.; van der Wal, Gerrit; ten Kate, Leo P. (2004-06)