Disclosing Individual CDKN2A Research Results to Melanoma Survivors: Interest, Impact, and Demands on Researchers
Christensen, Kurt D
Roberts, J Scott
Shalowitz, David I
Everett, Jessica N
Kim, Scott Y H
Gruber, Stephen B
Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology 2011 Mar; 20(3): 522-9
Whether to return individual research results from cancer genetics studies is widely debated, but little is known about how participants respond to results disclosure or about its time and cost burdens on investigators.
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Returning individual research results: development of a cancer genetics education and risk communication protocol. Roberts, J Scott; Shalowitz, David I; Christensen, Kurt D; Everett, Jessica N; Kim, Scott Y H; Raskin, Leon; Gruber, Stephen B (2010-09)The obligations of researchers to disclose clinically and/or personally significant individual research results are highly debated, but few empirical studies have addressed this topic. We describe the development of a ...