Shades of Truth: Cultural and Psychological Factors Affecting Communication in Pediatric Palliative Care
Journal of pain and symptom management 2011 Feb; 41(2): 491-5
Communication with children who have life-threatening illnesses is a major challenge. Communication practices are greatly influenced by factors such as the child's age, the parents' wishes, and the cultural norms. This article presents the case of a 12-year-old Japanese boy with advanced hepatoblastoma. The patient also was diagnosed with Asperger's syndrome, which impairs interpersonal communication. The case is discussed from the perspective of clinical ethics, especially with regard to truth telling. The health care team faced an ethical dilemma because of the complications involved. Physicians treating children with cancer should be aware of these issues to be able to effectively communicate with their patients.
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Year in Review in Intensive Care Medicine, 2004. III. Outcome, ICU Organisation, Scoring, Quality of Life, Ethics, Psychological Problems and Communication in the ICU, Immunity and Hemodynamics During Sepsis, Pediatric and Neonatal Critical Care, Experimental Studies Andrews, Peter; Azoulay, Elie; Antonelli, Massimo; Brochard, Laurent; Brun-Buisson, Christian; Dobb, Geoffrey; Fagon, Jean-Yves; Gerlach, Herwig; Groeneveld, Johan; Mancebo, Jordi; Metnitz, Philipp; Nava, Stefano; Pugin, Jerome; Pinsky, Michael; Radermacher, Peter; Richard, Christian; Tasker, Robert; Vallet, Benoit (2005-03)