Preservation of the Capacity to Appoint a Proxy Decision Maker: Implications for Dementia Research
Kim, Scott Y H
Karlawish, Jason H
Kim, H Myra
Wall, Ian F
Bozoki, Andrea C
Appelbaum, Paul S
Archives of general psychiatry 2011 Feb; 68(2): 214-20
Research involving persons with impaired decision-making capacity (such as persons with Alzheimer disease [AD]) remains ethically challenging, especially when the research involves significant risk. If individuals incapable of consenting to research studies were able to appoint a research proxy, it would allow for an appointed surrogate (rather than a de facto surrogate) to represent the subject.
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