Public Attitudes to the Use in Research of Personal Health Information From General Practitioners' Records: A Survey of the Irish General Public
Buckley, Brian S
Murphy, Andrew W
MacFarlane, Anne E
Journal of medical ethics 2011 Jan; 37(1): 50-5
Understanding the views of the public is essential if generally acceptable policies are to be devised that balance research access to general practice patient records with protection of patients' privacy. However, few large studies have been conducted about public attitudes to research access to personal health information.
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The General Public's Use of (And Attitudes Towards) Interactive, Personal Digital Health Information and Advisory Services Huntington, Paul; Nicholas, David; Homewood, Janet; Polydoratou, Panayiota; Gunter, Barrie; Russell, Chris; Withey, Richard (2004)
Alternatives to Project-Specific Consent for Access to Personal Information for Health Research: Insights From a Public Dialogue Willison, Donald J.; Swinton, Marilyn; Schwartz, Lisa; Abelson, Julia; Charles, Cathy; Northrup, David; Cheng, Ji; Thabane, Lehana (2008-11-18)BACKGROUND: The role of consent for research use of health information is contentious. Most discussion has focused on when project-specific consent may be waived but, recently, a broader range of consent options has been ...