Patient Perspectives on Group Benefits and Harms in Genetic Research
Goldenberg, A J
Hull, S C
Wilfond, B S
Sharp, R R
Public health genomics 2011; 14(3): 135-42
It is unclear how the possible effects of genetic research on socially identifiable groups may impact patient willingness to donate biological samples for future genetic studies.
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Hull, Sara Chandros; Sharp, Richard R.; Botkin, Jeffrey R.; Brown, Mark; Hughes, Mark; Sugarman, Jeremy; Schwinn, Debra; Sankar, Pamela; Bolcic-Jankovic, Dragana; Clarridge, Brian R.; Wilfond, Benjamin S. (2008-10)It is unclear whether the regulatory distinction between non-identifiable and identifiable information--information used to determine informed consent practices for the use of clinically derived samples for genetic ...
Hull, Sara Chandros; Gooding, Holly; Klein, Alison P.; Warshauer-Baker, Esther; Metosky, Susan; Wilfond, Benjamin S. (2004-05)