Sampling and Ethical Issues in a Multicenter Study on Health of People With Intellectual Disabilities
Veenstra, Marja Y
Walsh, Patricia N
van Schrojenstein Lantman-de Valk, Henny M J
Haveman, Meindert J
Kerr, Mike P
van Hove, Geert
Journal of clinical epidemiology 2010 Oct; 63(10): 1091-100
To study health inequalities in persons with intellectual disabilities, representative and unbiased samples are needed. Little is known about sample recruitment in this vulnerable group. This study aimed to determine differences in ethical procedures and sample recruitment in a multicenter research on health of persons with intellectual disabilities. Study questions regarded the practical sampling procedure, how ethical consent was obtained in each country, and which person gave informed consent for each study participant.
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