Sampling and Ethical Issues in a Multicenter Study on Health of People With Intellectual Disabilities
Creator
Veenstra, Marja Y
Walsh, Patricia N
van Schrojenstein Lantman-de Valk, Henny M J
Haveman, Meindert J
Linehan, Christine
Kerr, Mike P
Weber, Germain
Salvador-Carulla, Luis
Carmen-Cara, Alexandra
Azema, Bernard
Buono, Serafino
Germanavicius, Arunas
Tossebro, Jan
Maatta, Tuomo
van Hove, Geert
Moravec, Dasa
Bibliographic Citation
Journal of clinical epidemiology 2010 Oct; 63(10): 1091-100
Abstract
To study health inequalities in persons with intellectual disabilities, representative and unbiased samples are needed. Little is known about sample recruitment in this vulnerable group. This study aimed to determine differences in ethical procedures and sample recruitment in a multicenter research on health of persons with intellectual disabilities. Study questions regarded the practical sampling procedure, how ethical consent was obtained in each country, and which person gave informed consent for each study participant.
Date
2010-10Collections
Metadata
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