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Sampling and Ethical Issues in a Multicenter Study on Health of People With Intellectual Disabilities

dc.creatorVeenstra, Marja Yen
dc.creatorWalsh, Patricia Nen
dc.creatorvan Schrojenstein Lantman-de Valk, Henny M Jen
dc.creatorHaveman, Meindert Jen
dc.creatorLinehan, Christineen
dc.creatorKerr, Mike Pen
dc.creatorWeber, Germainen
dc.creatorSalvador-Carulla, Luisen
dc.creatorCarmen-Cara, Alexandraen
dc.creatorAzema, Bernarden
dc.creatorBuono, Serafinoen
dc.creatorGermanavicius, Arunasen
dc.creatorTossebro, Janen
dc.creatorMaatta, Tuomoen
dc.creatorvan Hove, Geerten
dc.creatorMoravec, Dasaen
dc.date.accessioned2016-01-09T00:40:25Zen
dc.date.available2016-01-09T00:40:25Zen
dc.date.created2010-10en
dc.date.issued2010-10en
dc.identifierdoi:10.1016/j.jclinepi.2009.12.001en
dc.identifier.bibliographicCitationJournal of clinical epidemiology 2010 Oct; 63(10): 1091-100en
dc.identifier.urihttp://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Sampling+and+ethical+issues+in+a+multicenter+study+on+health+of+people+with+intellectual+disabilities.&title=Journal+of+clinical+epidemiology+&volume=63&issue=10&date=2010-10&au=Veenstra,+Marja+Y;+Walsh,+Patricia+N;+van+Schrojenstein+Lantman-de+Valk,+Henny+M+J;+Haveman,+Meindert+J;+Linehan,+Christine;+Kerr,+Mike+P;+Weber,+Germain;+Salvador-Carulla,+Luis;+Carmen-Cara,+Alexandra;+Azema,+Bernard;+Buono,+Serafino;+Germanavicius,+Arunas;+Tossebro,+Jan;+Maatta,+Tuomo;+van+Hove,+Geert;+Moravec,+Dasaen
dc.identifier.urihttp://dx.doi.org/10.1016/j.jclinepi.2009.12.001en
dc.identifier.urihttp://hdl.handle.net/10822/1021141en
dc.description.abstractTo study health inequalities in persons with intellectual disabilities, representative and unbiased samples are needed. Little is known about sample recruitment in this vulnerable group. This study aimed to determine differences in ethical procedures and sample recruitment in a multicenter research on health of persons with intellectual disabilities. Study questions regarded the practical sampling procedure, how ethical consent was obtained in each country, and which person gave informed consent for each study participant.en
dc.formatArticleen
dc.languageenen
dc.sourceeweb:334768en
dc.subjectConsenten
dc.subjectHealthen
dc.subjectResearchen
dc.subject.classificationInformed Consent or Human Experimentationen
dc.subject.classificationHealth Care for Mentally Disabled Personsen
dc.titleSampling and Ethical Issues in a Multicenter Study on Health of People With Intellectual Disabilitiesen
dc.provenanceCitation prepared by the Library and Information Services group of the Kennedy Institute of Ethics, Georgetown University for the ETHXWeb database.en
dc.provenanceCitation migrated from OpenText LiveLink Discovery Server database named EWEB hosted by the Bioethics Research Library to the DSpace collection EthxWeb hosted by DigitalGeorgetown.en


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