Strategies for Health Data Exchange for Secondary, Cross-Institutional Clinical Research
Elger, Bernice S
Lo Iacono, Luigi
Computer methods and programs in biomedicine 2010 Sep; 99(3): 230-51
Secondary use of health data has a vital role in improving and advancing medical knowledge. While digital health records offer scope for facilitating the flow of data to secondary uses, it remains essential that steps are taken to respect wishes of the patient regarding secondary usage, and to ensure the privacy of the patient during secondary use scenarios. Consent, together with depersonalisation and its related concepts of anonymisation, pseudonymisation, and data minimisation are key methods used to provide this protection. This paper gives an overview of technical, practical, legal, and ethical aspects of secondary data use and discusses their implementation in the multi-institutional @neurIST research project.
Showing items related by title, author, creator and subject.
Aids Sourcebook: Basic Consumer Health Information About Acquired Immune Deficiency Syndrome (Aids) and Human Immunodeficiency Virus (Hiv) Infection, Featuring Updated Statistical Data, Reports on Recent Research and Prevention Initiatives, And Other Special Topics of Interest for Persons Living With Aids, Including New Antiretroviral Treatment Options, Strategies for Combating Opportunistic Infections, Information About Clinical Trials, and More; Along With a Glossary of Important Terms And Resource Listings for Further Help and Information Bellenir, Karen (1998)