Deliberative Assessment of Surrogate Consent in Dementia Research
Kim, Scott Y H
Uhlmann, Rebecca A
Appelbaum, Paul S
Knopman, David S
Kim, H Myra
De Vries, Raymond
Alzheimer's & dementia : the journal of the Alzheimer's Association 2010 Jul; 6(4): 342-50
Research involving incapacitated persons with dementia entails complex scientific, legal, and ethical issues, making traditional surveys of layperson views on the ethics of such research challenging. We therefore assessed the impact of democratic deliberation (DD), involving balanced, detailed education and peer deliberation, on the views of those responsible for persons with dementia.
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Assessing the Quality of Democratic Deliberation: A Case Study of Public Deliberation on the Ethics of Surrogate Consent for Research De Vries, Raymond; Stanczyk, Aimee; Wall, Ian F; Uhlmann, Rebecca; Damschroder, Laura J; Kim, Scott Y (2010-06)"Deliberative democracy" is an increasingly popular method for soliciting public input on health care policies. There are a number of ways of organizing deliberative democracy (DD) sessions, but they generally involve ...
Preservation of the Capacity to Appoint a Proxy Decision Maker: Implications for Dementia Research Kim, Scott Y H; Karlawish, Jason H; Kim, H Myra; Wall, Ian F; Bozoki, Andrea C; Appelbaum, Paul S (2011-02)Research involving persons with impaired decision-making capacity (such as persons with Alzheimer disease [AD]) remains ethically challenging, especially when the research involves significant risk. If individuals incapable ...