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dc.creatorWiesemann, Claudiaen
dc.creatorUde-Koeller, Susanneen
dc.creatorSinnecker, Gernot H Gen
dc.creatorThyen, Uteen
dc.date.accessioned2016-01-09T00:41:22Zen
dc.date.available2016-01-09T00:41:22Zen
dc.date.created2010-06en
dc.date.issued2010-06en
dc.identifierdoi:10.1007/s00431-009-1086-xen
dc.identifier.bibliographicCitationEuropean journal of pediatrics 2010 Jun; 169(6): 671-9en
dc.identifier.urihttp://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Ethical+principles+and+recommendations+for+the+medical+management+of+differences+of+sex+development/intersex+in+children+and+adolescents.&title=European+journal+of+pediatrics+&volume=169&issue=6&date=2010-06&au=Wiesemann,+Claudia;+Ude-Koeller,+Susanne;+Sinnecker,+Gernot+H+G;+Thyen,+Uteen
dc.identifier.urihttp://dx.doi.org/10.1007/s00431-009-1086-xen
dc.identifier.urihttp://hdl.handle.net/10822/1022780en
dc.description.abstractThe medical management of differences of sex development (DSD)/intersex in early childhood has been criticized by patients' advocates as well as bioethicists from an ethical point of view. Some call for a moratorium of any feminizing or masculinizing operations before the age of consent except for medical emergencies. No exhaustive ethical guidelines have been published until now. In particular, the role of the parents as legal representatives of the child is controversial. In the article, we develop, discuss, and present ethical principles and recommendations for the medical management of intersex/DSD in children and adolescents. We specify three basic ethical principles that have to be respected and substantiate them. The article includes a critical discussion of the best interest of the child and of family privacy. The argumentation draws upon recommendations by the working group "Bioethics and Intersex" within the German Network DSD/Intersex, which are presented in detail. Unlike other recommendations with regard to intersex, these guidelines represent a comprehensive view of the perspectives of clinicians, patients, and their families. CONCLUSION: The working group identified three leading ethical principles that apply to DSD management: (1) to foster the well-being of the child and the future adult, (2) to uphold the rights of children and adolescents to participate in and/or self-determine decisions that affect them now or later, and (3) to respect the family and parent-child relationships. Nine recommendations for the management of DSD indicate how these ethical principles can spelled out and balanced against each other in the clinical setting.en
dc.formatArticleen
dc.languageenen
dc.sourceeweb:332716en
dc.subjectAdolescentsen
dc.subjectBioethicsen
dc.subjectChildrenen
dc.subjectConsenten
dc.subjectGuidelinesen
dc.subjectParentsen
dc.subjectPatientsen
dc.subjectPrivacyen
dc.subjectRightsen
dc.subject.classificationPatient Relationshipsen
dc.subject.classificationSexuality / Genderen
dc.subject.classificationMinors / Parental Consenten
dc.subject.classificationHealth Care for Newborns and Minorsen
dc.titleEthical Principles and Recommendations for the Medical Management of Differences of Sex Development (DSD)/intersex in Children and Adolescentsen
dc.provenanceCitation prepared by the Library and Information Services group of the Kennedy Institute of Ethics, Georgetown University for the ETHXWeb database.en
dc.provenanceCitation migrated from OpenText LiveLink Discovery Server database named EWEB hosted by the Bioethics Research Library to the DSpace collection EthxWeb hosted by DigitalGeorgetown.en


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