Mind the Child: Using Interactive Technology to Improve Child Involvement in Decision Making About Life-Limiting Illness
Barfield, Raymond C.
American Journal of Bioethics 2010 April; 10(4): 28-30
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Wright, B; Aldridge, J; Wurr, K; Sloper, T; Tomlinson, H; Miller, M (2009-04)Decision making about interventions for children and young people with life-limiting illnesses is fraught with difficulties but faced regularly by staff in children's hospices and paediatric wards. The perspectives of the ...
Agency and Communication Challenges in Discussions of Informed Consent in Pediatric Cancer Research Young, Amanda J; Kim, Loel; Shu Li,; Baker, Justin N; Schmidt, Michael; Camp, Jonathan W; Barfield, Raymond C (2010-05)In this article we examine the discourse of four focus groups we conducted at a pediatric research hospital in which we queried teenage patients, parents, nurses, and physicians about their perceptions of the informed ...