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dc.creatorBeskow, Laura M.en
dc.creatorSmolek, Sondra J.en
dc.date.accessioned2016-01-09T00:46:10Zen
dc.date.available2016-01-09T00:46:10Zen
dc.date.created2009-09en
dc.date.issued2009-09en
dc.identifierdoi:10.1525/jer.2009.4.3.99en
dc.identifier.bibliographicCitationJournal of Empirical Research on Human Research Ethics 2009 September; 4(3): 99-111en
dc.identifier.urihttp://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Prospective+biorepository+participants'+perspectives+on+access+to+research+results.&title=Journal+of+Empirical+Research+on+Human+Research+Ethics+&volume=4&issue=3&date=2009-09&au=Beskow,+Laura+M.;+Smolek,+Sondra+J.en
dc.identifier.urihttp://dx.doi.org/10.1525/jer.2009.4.3.99en
dc.identifier.urihttp://timetravel.mementoweb.org/memento/2009/http://caliber.ucpress.net/loi/jeren
dc.identifier.urihttp://hdl.handle.net/10822/1027132en
dc.description.abstractDISCLOSURE OF INDIVIDUAL RESEARCH results to research participants has been the subject of professional guidelines as well as scholarly commentary, yet controversy remains. To gather data on participant perspectives, we interviewed 40 individuals from the Durham, North Carolina area about a biorepository consent form and conducted an in-depth analysis of responses to a series of questions concerning access to research results. Cross-cutting themes emerged about (1) the nature of research; (2) the nature of research results; (3) expectations concerning access to research results; and (4) practical issues in providing access to research results. Our findings highlight the importance for sound policy development of soliciting stakeholder input, and exploring the complexities behind their evaluations.en
dc.formatArticleen
dc.languageenen
dc.sourceeweb:326941en
dc.subjectConsenten
dc.subjectDisclosureen
dc.subjectGuidelinesen
dc.subjectNatureen
dc.subjectResearchen
dc.subject.classificationSociology of Health Careen
dc.subject.classificationPatient Relationshipsen
dc.subject.classificationConfidentialityen
dc.subject.classificationInformed Consent or Human Experimentationen
dc.subject.classificationDonation / Procurement of Organs and Tissuesen
dc.subject.classificationInformation Science Ethicsen
dc.titleProspective Biorepository Participants' Perspectives on Access to Research Resultsen
dc.provenanceCitation prepared by the Library and Information Services group of the Kennedy Institute of Ethics, Georgetown University for the ETHXWeb database.en
dc.provenanceCitation migrated from OpenText LiveLink Discovery Server database named EWEB hosted by the Bioethics Research Library to the DSpace collection EthxWeb hosted by DigitalGeorgetown.en


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