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dc.creatorKoffman, Jonathanen
dc.creatorMorgan, M.en
dc.creatorEdmonds, P.en
dc.creatorSpeck, P.en
dc.creatorHigginson, I.J.en
dc.date.accessioned2016-01-09T00:46:33Zen
dc.date.available2016-01-09T00:46:33Zen
dc.date.created2009-07en
dc.date.issued2009-07en
dc.identifierdoi:10.1136/jme.2008.027839en
dc.identifier.bibliographicCitationJournal of Medical Ethics 2009 July; 35(7): 440-444en
dc.identifier.urihttp://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Vulnerability+in+palliative+care+research:+findings+from+a+qualitative+study+of+black+Caribbean+and+white+British+patients+with+advanced+cancer&title=Journal+of+Medical+Ethics+&volume=35&issue=7&date=2009-07&au=Koffman,+Jonathan;+Morgan,+M.;+Edmonds,+P.;+Speck,+P.;+Higginson,+I.J.en
dc.identifier.urihttp://dx.doi.org/10.1136/jme.2008.027839en
dc.identifier.urihttp://hdl.handle.net/10822/1027767en
dc.description.abstractIntroduction: Vulnerability is a poorly understood concept in research ethics, often aligned to autonomy and consent. A recent addition to the literature represents a taxonomy of vulnerability developed by Kipnis, but this refers to the conduct of clinical trials rather than qualitative research, which may raise different issues. AIM: To examine issues of vulnerability in cancer and palliative care research obtained through qualitative interviews. Method: Secondary analysis of qualitative data from 26 black Caribbean and 19 white British patients with advanced cancer. RESULTS: Four domains of vulnerability derived from Kipnis's taxonomy were identified and included: (i) communicative vulnerability, represented by participants impaired in their ability to communicate because of distressing symptoms; (ii) institutional vulnerability, which referred to participants who existed under the authority of others--for example, in hospital; (iii) deferential vulnerability, which included participants who were subject to the informal authority or the independent interests of others; (iv) medical vulnerability, which referred to participants with distressing medical conditions; and (v) social vulnerability, which included participants considered to belong to an undervalued social group. Participants from both ethnic groups populated all these domains, but those who were black Caribbean were more present among the socially vulnerable. CONCLUSIONS: Current classifications of vulnerability require reinterpretation when applied to qualitative research at the end of life. We recommend that researchers and research ethics committees reconceptualize vulnerability using the domains identified in this study and consider the research context and interviewers' skills.en
dc.formatArticleen
dc.languageenen
dc.sourceeweb:326128en
dc.subjectAutonomyen
dc.subjectCanceren
dc.subjectClinical Trialsen
dc.subjectConsenten
dc.subjectEthicsen
dc.subjectEthics Committeesen
dc.subjectEthnic Groupsen
dc.subjectInterviewsen
dc.subjectLifeen
dc.subjectLiteratureen
dc.subjectPalliative Careen
dc.subjectPatientsen
dc.subjectQualitative Researchen
dc.subjectResearchen
dc.subjectResearch Ethicsen
dc.subjectResearch Ethics Committeesen
dc.subjectResearchersen
dc.subject.classificationHuman Experimentation Policy Guidelines / Institutional Review Boardsen
dc.subject.classificationResearch on Elderly and Terminally Ill Personsen
dc.titleVulnerability in Palliative Care Research: Findings From a Qualitative Study of Black Caribbean and White British Patients With Advanced Canceren
dc.provenanceCitation prepared by the Library and Information Services group of the Kennedy Institute of Ethics, Georgetown University for the ETHXWeb database.en
dc.provenanceCitation migrated from OpenText LiveLink Discovery Server database named EWEB hosted by the Bioethics Research Library to the DSpace collection EthxWeb hosted by DigitalGeorgetown.en


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