Privacy in Genomic Databases
In this talk, Dr. Joel Kupersmith engages the tension between the benefits of increased access to genomic databases and the costs of individual patient privacy. Dr. Joel Kupersmith is head of the Office of Research and Development of the Department of Veteran Affairs, and is the former Dean of the Texas Tech University School of Medicine.
Copyright Kennedy Institute of Ethics, Georgetown University. All rights reserved.
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Knoppers, Bartha Maria; Harris, Jennifer R; Burton, Paul R; Murtagh, Madeleine; Cox, David; Deschênes, Mylène; Fortier, Isabel; Hudson, Thomas J; Kaye, Jane; Lindpaintner, Klaus (2011-08)The rapid rise of international collaborative science has enabled access to genomic data. In this article, it is argued that to move beyond mapping genomic variation to understanding its role in complex disease aetiology ...