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Pediatric Palliative Care
Progress in pediatric palliative care has gained momentum, but there remain significant barriers to the appropriate provision of palliative care to ill and dying children, including the lack of properly trained health care ...
Joseph's Wishes: Ethical Decision-Making in Duchenne Muscular Dystrophy
The death of a child is an uncommon occurrence and can be difficult for families to accept. Attempts by the healthcare team to discuss end-of-life issues can be so upsetting to families that they refuse to participate in ...