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Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.
Genetic discrimination-defined as the denial of rights, privileges, or opportunities or other adverse treatment based solely on genetic information (including family history)-is an important concern to patients, healthcare ...
Anti-stigmatization and ethical perspectives on mental illness and genetic technologies
People with mental illness suffer from their disorder as well as from social stigma. This paper explores the bio-psycho-social reasons that underlie human stigma and proposes potential anti-stigmatization strategies. ...
Whole-genome association studies for multigenic diseases: ethical dilemmas arising from commercialization--the case of genetic testing for autism.
This paper examines some ethical issues arising from whole-genome association studies for multigenic diseases, focusing on the case of autism. Events occurring following the announcement of a genetic test for autism in ...
Caregiver Mental Health and Potentially Harmful Caregiving Behavior: The Central Role of Caregiver Anger
PURPOSE: Caregivers feeling stress and experiencing mental health problems can be at risk for engaging in abusive acts against elderly care recipients. Potentially harmful behavior (PHB) was used as a measure of caregivers' ...
Ethical Issues in End of Life Treatments for Patients With Dementia
(Bioethics and Palliative Care in Neurology Study Group of Italian Society of Neurology, 2010-06-01)
Dementia is a terminal disease, associated with great suffering and difficult decisions in the severe stage. The decision-making process is characterized by uncertainty because of lack of scientific evidence in treatments ...
Ethical Dilemmas: Should Antipsychotics Ever Be Prescribed for People With Dementia?
The use of antipsychotics for the treatment of behavioural and psychological symptoms of dementia (BPSD) is controversial. Antipsychotics cause harm and evidence-based guidelines advise against their use. We argue that ...
Brain-Machine Interface: The Challenge of Neuroethics
The burning question surrounding the use of Brain-Machine Interface (BMI) devices is not merely whether they should be used, but how widely they should be used, especially in view of some ethical implications that arise ...
Dignity, Dining and Dialogue: Reviewing the Literature on Quality of Life for People With Dementia
To review contemporary literature on quality of life for people with dementia.
Women and Reproductive Control: The Nexus Between Abortion and Contraceptive Use in Madhya Pradesh, India
This article examines the determinants of contraceptive and abortion behavior and how each of these influences the other, with an emphasis on the role of women's life-course stage and experience. We base our approach on ...
Community Nurses' Experiences of Ethical Dilemmas in Palliative Care: A Swedish Study
AIM: The aim of this study was to highlight community nurses' experiences of ethical dilemmas in palliative care. BACKGROUND: There are many studies on palliative care but research on how community nurses experience ethical ...