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Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.
(2010-07)
Genetic discrimination-defined as the denial of rights, privileges, or opportunities or other adverse treatment based solely on genetic information (including family history)-is an important concern to patients, healthcare ...
Turkish Nurses' Decision Making in the Distribution of Intensive Care Beds
(2010-01)
The aim of this study was to assess the opinions and role of intensive care unit (ICU) nurses regarding the distribution of ICU beds. We conducted this research among 30% of the attendees at two ICU congresses in Turkey. ...
Cardiopulmonary Resuscitation and Do-Not-Resuscitate Orders: A Guide for Clinicians
(2010-01)
The do-not-resuscitate order, introduced nearly a half century ago, continues to raise questions and controversy among health care providers and patients. In today's society, the expectation and availability of medical ...
Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships
(American College of Physicians Ethics, Professionalism and Human Rights Committee, 2010-03)
Family caregivers play a major role in maximizing the health and quality of life of more than 30 million individuals with acute and chronic illness. Patients depend on family caregivers for assistance with daily activities, ...
Dying With Dignity in America: The Transformational Leadership of Florence Wald
(2010-03)
The aims of this study are to examine the constructs of transformational leadership as they played out for one nurse who steered significant change in the care of the dying in the United States and to provide deeper insights ...
Towards Self-Determination in Quality of Life Research: A Dialogic Approach
(2010-02)
Health-related quality of life measures aim to assess patients' subjective experience in order to gauge an increasingly wide variety of health care issues such as patient needs; satisfaction; side effects; quality of care; ...
Attitudes of Health Care Professionals, Relatives of Advanced Cancer Patients and Public Towards Euthanasia and Physician Assisted Suicide
(2010-10)
Nowadays, euthanasia has the meaning of the direct administration of a lethal agent to the patient by another party with a merciful intent after patients' request. Physician assisted suicide refers to the patient intentionally ...
The Last Phase of Life: Who Requests and Who Receives Euthanasia or Physician-Assisted Suicide?
(2010-07)
BACKGROUND: When suffering becomes unbearable for patients they might request for euthanasia. OBJECTIVE: To study which patients request for euthanasia and which requests actually resulted in euthanasia in relation with ...
Advance Directives and Do-Not-Resuscitate Orders in Patients With Cancer With Metastatic Spinal Cord Compression: Advanced Care Planning Implications
(2010-05)
OBJECTIVES: Communication about end-of-life decisions is crucial. Although patients with metastatic spinal cord compression (MSCC) have a median survival time of 3 to 6 months, few data are available concerning the presence ...
The Critical Role of Religion: Caring for the Dying Patient From an Orthodox Jewish Perspective
(2010-10)
Culturally competent medical care for the dying patient by families and health care professionals is a challenging task especially when religious values, practices, and beliefs influence treatment decisions for patients ...