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Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.
(2010-07)
Genetic discrimination-defined as the denial of rights, privileges, or opportunities or other adverse treatment based solely on genetic information (including family history)-is an important concern to patients, healthcare ...
Turkish Nurses' Decision Making in the Distribution of Intensive Care Beds
(2010-01)
The aim of this study was to assess the opinions and role of intensive care unit (ICU) nurses regarding the distribution of ICU beds. We conducted this research among 30% of the attendees at two ICU congresses in Turkey. ...
Cardiopulmonary Resuscitation and Do-Not-Resuscitate Orders: A Guide for Clinicians
(2010-01)
The do-not-resuscitate order, introduced nearly a half century ago, continues to raise questions and controversy among health care providers and patients. In today's society, the expectation and availability of medical ...
Contested embryonic culture in Japan--public discussion, and human embryonic stem cell research in an aging welfare society.
(2010-01)
This article explores the reasons for the lack of a broad discussion on bioethical regulation of human embryonic stem cell research (hESR) in Japan and asks why scientists experience difficulties accessing resources for ...
Mandatory versus voluntary consent for newborn screening?
(2010-12)
Virtually every infant in the United States undergoes a heel stick within the first week of life to test for a variety of metabolic, endocrine, and hematological conditions as part of state-run universal newborn screening ...
Anti-stigmatization and ethical perspectives on mental illness and genetic technologies
(2010-12)
People with mental illness suffer from their disorder as well as from social stigma. This paper explores the bio-psycho-social reasons that underlie human stigma and proposes potential anti-stigmatization strategies. ...
Genetic counselling as care of the self.
(2010-07)
Genetic counselling has frequently been described as a disciplinary practice, with the goal of 'risk reduction'. In this article another dimension to genetic counselling is considered through the Foucauldian theorization ...
Genetic screening: a conceptual framework for programmes and policy-making.
(2010-04)
OBJECTIVE: Policy-makers are faced with increasing pressures from a range of different stakeholders to introduce or expand genetic screening programmes. A shared understanding is therefore needed of the many factors ...
Caregiver Mental Health and Potentially Harmful Caregiving Behavior: The Central Role of Caregiver Anger
(2010-02)
PURPOSE: Caregivers feeling stress and experiencing mental health problems can be at risk for engaging in abusive acts against elderly care recipients. Potentially harmful behavior (PHB) was used as a measure of caregivers' ...