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Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.
(2010-07)
Genetic discrimination-defined as the denial of rights, privileges, or opportunities or other adverse treatment based solely on genetic information (including family history)-is an important concern to patients, healthcare ...
Transformational Experiences in Adult-to-Adult Living-Donor Liver Transplant Recipients
(2010-01)
AIM: This paper is a report of a study conducted to explore the transformational experiences of adult-to-adult living-donor liver transplant recipients. BACKGROUND: Living-donor liver transplant was developed to overcome ...
Turkish Nurses' Decision Making in the Distribution of Intensive Care Beds
(2010-01)
The aim of this study was to assess the opinions and role of intensive care unit (ICU) nurses regarding the distribution of ICU beds. We conducted this research among 30% of the attendees at two ICU congresses in Turkey. ...
"Love Your Neighbor Like Yourself": A Jewish Ethical Approach to the Use of Pain Medication With Potentially Dangerous Side Effects
(2010-01)
Palliation of pain is universally regarded as a cardinal aspect of end-of-life care. In the early days of the palliative care and hospice movement there was concern that aggressive pain control with opioids could potentially ...
Cardiopulmonary Resuscitation and Do-Not-Resuscitate Orders: A Guide for Clinicians
(2010-01)
The do-not-resuscitate order, introduced nearly a half century ago, continues to raise questions and controversy among health care providers and patients. In today's society, the expectation and availability of medical ...
Genetics professionals' experiences with grief and loss: implications for support and training.
(2010-05)
This study was designed to determine the degree to which clinical genetics professionals are comfortable with grief and loss, whether discomfort with grief and loss is associated with clinician distress, and what factors ...
Counterpoint: implementing population genetic screening for Lynch Syndrome among newly diagnosed colorectal cancer patients--will the ends justify the means?
(2010-05)
Inherited mutations in 1 of 4 known mismatch repair genes (MLH1, MSH2, MSH6, PMS2) are associated with various cancer risks collectively referred to as Lynch syndrome. Roughly 3 of every 100 new colorectal cancers (CRCs) ...
Whole-genome association studies for multigenic diseases: ethical dilemmas arising from commercialization--the case of genetic testing for autism.
(2010-07)
This paper examines some ethical issues arising from whole-genome association studies for multigenic diseases, focusing on the case of autism. Events occurring following the announcement of a genetic test for autism in ...
Hospital Characteristics Associated With Feeding Tube Placement in Nursing Home Residents With Advanced Cognitive Impairment
(2010-02-10)
CONTEXT: Tube-feeding is of questionable benefit for nursing home residents with advanced dementia. Approximately two-thirds of US nursing home residents who are tube fed had their feeding tube inserted during an acute ...
Attitudes of Patients With Malignancies Towards Completion of Advance Directives
(2010-03)
AIM: The purpose of advance directives (AD) is to preserve the patient's autonomy at the end of his/her life. In a cohort study, we investigated attitudes towards AD in hospitalized patients with malignant disease. MATERIALS ...