Ethics in population-based genetic research
Accountability in Research 2004 January-March; 11(1): 1-26
Population-based genetic research, including genetic epidemiology, shows tremendous potential to elucidate the role of genes as causal factors in complex and common human diseases. Like all research with human subjects, full realization of these benefits requires careful attention to its ethical conduct, establishing an appropriate balance between individual protections and the advancement of scientific and medical knowledge. This article reviews the growing literature on genetics research and ethics to describe some of the fundamental ethical issues in population-based genetics research, including research design, recruitment and informed consent, and dealing with research results. Its focus is on areas where consensus is forming and where future work is needed.
External LinkFull Text from Publisher
Consensus; Consent; Epidemiology; Ethics; Genes; Genetic Epidemiology; Genetic Research; Genetics; Informed Consent; Knowledge; Literature; Research; Research Design; Science, Technology, and Society; Sociology of Health Care; Population; Genetics, Molecular Biology and Microbiology; Genome Mapping; Human Experimentation Policy Guidelines / Institutional Review Boards; Informed Consent or Human Experimentation; Information Science Ethics; Scientific Research Ethics;
Showing items related by title, author, creator and subject.
DeCamp, Matthew; Sugarman, Jeremy (2004-01)As research in behavioral genetics uncovers the genetic contribution to human behavior, it will undoubtedly further our understanding of normal human variation in many behavioral traits, such as personality, intelligence, ...
Participant characteristics that influence consent for genetic research in a population-based survey: the Baltimore epidemiologic catchment area follow-up. Mezuk, Briana; Eaton, William W.; Zandi, Peter (2008-03)BACKGROUND: The purpose of this study is to investigate the sociodemographic and health characteristics associated with the willingness to donate a DNA sample, and consent to testing and long-term storage of that sample, ...