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dc.creatorVilhjálmur Árnason, 1953-en
dc.date.accessioned2011-07-12T18:17:24Zen
dc.date.available2011-07-12T18:17:24Zen
dc.date.created2004-02en
dc.date.issued2004-02en
dc.identifier.bibliographicCitationBioethics 2004 February; 18(1): 27-49en
dc.identifier.urihttp://hdl.handle.net/10822/504272en
dc.description.abstractA major moral problem in relation to the deCODE genetics database project in Iceland is that the heavy emphasis placed on technical security of healthcare information has precluded discussion about the issue of consent for participation in the database. On the other hand, critics who have emphasised the issue of consent have most often demanded that informed consent for participation in research be obtained. While I think that individual consent is of major significance, I argue that this demand for informed consent is neither suitable nor desirable in this case. I distinguish between three aspects of the database and show that different types of consent are appropriate for each. In particular, I describe the idea of a written authorisation based on general information about the database as an alternative to informed consent and presumed consent in database research.en
dc.formatArticleen
dc.languageengen
dc.source269922en
dc.subjectConsenten
dc.subjectGeneticsen
dc.subjectInformed Consenten
dc.subjectPresumed Consenten
dc.subjectResearchen
dc.subject.classificationConfidentialityen
dc.subject.classificationGenetics, Molecular Biology and Microbiologyen
dc.subject.classificationGenetic Screening / Genetic Testingen
dc.subject.classificationInformed Consent or Human Experimentationen
dc.subject.classificationSocial Control of Human Experimentationen
dc.subject.classificationInformation Science Ethicsen
dc.titleCoding and consent: moral challenges of the database project in Icelanden
dc.provenanceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National Human Genome Research Instituteen
dc.provenanceDigital citation migrated from OpenText Livelink Discovery Server database named GenETHX to DSpace collection GenETHX hosted by Georgetown Universityen


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