Recruitment approaches for family studies: attitudes of index patients and their relatives
Hull, Sara Chandros
Wilfond, Benjamin S.
IRB: Ethics and Human Research 2004 July-August; 26(4): 12-17
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Hull, Sara Chandros; Sharp, Richard R.; Botkin, Jeffrey R.; Brown, Mark; Hughes, Mark; Sugarman, Jeremy; Schwinn, Debra; Sankar, Pamela; Bolcic-Jankovic, Dragana; Clarridge, Brian R.; Wilfond, Benjamin S. (2008-10)It is unclear whether the regulatory distinction between non-identifiable and identifiable information--information used to determine informed consent practices for the use of clinically derived samples for genetic ...