Ethical issues in identifying and recruiting participants for familial genetic research
Beskow, Laura M.
Botkin, Jeffrey R.
Juengst, Eric T.
Lehmann, Lisa Soleymani
Merz, Jon F.
Press, Nancy A.
Ross, Lainie Friedman
Susswein, Lisa R.
Terry, Sharon F.
Austin, Melissa A.
American Journal of Medical Genetics 2004 November 1; 130A(4): 424-431
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Beskow, Laura M.; Burke, Wylie; Merz, Jon F.; Barr, Patricia; Terry, Sharon; Penchaszadeh, Victor B.; Gostin, Lawrence O.; Gwinn, Marta; Khoury, Muin J. (2001-11-14)
Emanuel, Ezekiel J.; Wood, Anne; Fleischman, Alan; Bowen, Angela; Getz, Kenneth A.; Grady, Christine; Levine, Carol; Hammerschmidt, Dale E.; Faden, Ruth; Eckenwiler, Lisa; Muse, Carianne Tucker; Sugarman, Jeremy (2004-08-17)The oversight of research involving human participants is widely believed to be inadequate. The U.S. Congress, national commissions, the Department of Health and Human Services, the Institute of Medicine, numerous professional ...