Information and informed consent in a longitudinal screening involving children: a questionnaire survey
Stolt, Ulrica Gustafsson
European Journal of Human Genetics 2005 March; 13(3): 376- 383
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How to Handle Informed Consent in Longitudinal Studies When Participants Have a Limited Understanding of the Study Helgesson, Gert; Ludvigsson, J.; Gustafsson Stolt, U. (2005-11)Empirical findings from a Swedish longitudinal screening study show that many of the research subjects had a limited understanding of the study. Nevertheless they were satisfied with the understanding they had and found ...