Ethical goals of community consultation in research
American Journal of Public Health 2005 July; 95(7): 1123-1127
In response to the traditional emphasis on the rights, interests, and well-being of individual research subjects, there has been growing attention focused on the importance of involving communities in research development and approval. Community consultation is a particularly common method of involving communities. However, the fundamental ethical goals of community consultation have not been delineated, which makes it difficult for investigators, sponsors, and institutional review boards to design and evaluate consultation efforts. Community consultation must be tailored to the communities in which it is conducted, but the purposes of consultation-the ethical goals it is designed to achieve-should be universal. We propose 4 ethical goals that give investigators, sponsors, institutional review boards, and communities a framework for evaluating community consultation processes.
Showing items related by title, author, creator and subject.
Dickert, Neal W.; Sugarman, Jeremy (2006-05)
Getting the Ethics Right Regarding Research in the Emergency Setting: Lessons From the PolyHeme Study Dickert, Neal W.; Sugarman, Jeremy (2007-06)Research in emergency settings (RES) has become a major public issue with urgent policy implications. Significant attention has focused recently on RES in response to the trial of PolyHeme, a synthetic blood substitute, ...
Protecting Research Subjects Under the Waiver of Informed Consent for Emergency Research: Experiences With Efforts to Inform the Community Shah, Amit Navin; Sugarman, Jeremy (2003-01)