Informed consent for genetic research.
Botkin, Jeffrey R.
Current Protocols in Human Genetics 2005 November; Chapter 1: Unit 1.16
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Hull, Sara Chandros; Sharp, Richard R.; Botkin, Jeffrey R.; Brown, Mark; Hughes, Mark; Sugarman, Jeremy; Schwinn, Debra; Sankar, Pamela; Bolcic-Jankovic, Dragana; Clarridge, Brian R.; Wilfond, Benjamin S. (2008-10)It is unclear whether the regulatory distinction between non-identifiable and identifiable information--information used to determine informed consent practices for the use of clinically derived samples for genetic ...
Botkin, Jeffrey R. (2010-07)Genetic research often utilizes or generates information that is potentially sensitive to individuals, families, or communities. For these reasons, genetic research may warrant additional scrutiny from investigators and ...
Genetic Testing for Susceptibility to Adult-Onset Cancer: The Process and Content of Informed Consent Geller, Gail; Botkin, Jeffrey R.; Green, Michael J.; Press, Nancy; Biesecker, Barbara B.; Wilfond, Benjamin; Grana, Generosa; Daly, Mary B.; Schneider, Katherine; Kahn, Mary Jo Ellis (1997-05-14)OBJECTIVE: To provide guidance on informed consent to clinicians offering cancer susceptibility testing. PARTICIPANTS: The Task Force on Informed Consent is part of the Cancer Genetics Studies Consortium (CGSC), whose ...