The regulation of genetic research and the commercialisation of its results in Finland
Medical Law International 2006; 7(4): 309-328
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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group. Fabsitz, Richard R.; McGuire, Amy; Sharp, Richard R.; Puggal, Mona; Beskow, Laura M.; Biesecker, Leslie; Bookman, Ebony; Burke, Wylie; Burchard, Esteban Gonzalez; Church, George; Clayton, Ellen Wright; Eckfeldt, John H.; Fernandez, Conrad V.; Fisher, Rebecca; (2010-12-01)In January 2009, the National Heart, Lung, and Blood Institute convened a 28-member multidisciplinary Working Group to update the recommendations of a 2004 National Heart, Lung, and Blood Institute Working Group focused ...
Beskow, Laura M.; Burke, Wylie (2010-06-30)The disclosure of individual genetic research results to study participants continues to be the subject of vigorous debate, centered primarily on the nature of the results. We suggest that research context, which is ...