Creating donors: the 2005 Swiss law on donation of ?spare? embryos to hESC research
Scully, Jackie Leach
Journal of Bioethical Inquiry 2006; 3(1-2): 81-93
In November 2004, the Swiss population voted to accept a law on research using human embryonic stem cells. In this paper, we use Switzerland as a case study of the shaping of the ostensibly ethical debate on the use of embryos in embryonic stem cell research by legal, political and social constraints. We describe how the national and international context affected the content and wording of the law. We discuss the consequences of the revised law's separation of stem cell research from other forms of embryo research, its definitions of embryo and of spare embryos, and the introduction of donorship into the Swiss ethical debate on IVF. We focus on the exclusion of the potential embryo donors' voices and perspectives from the debate, and consider the effects of this exclusion on ethical discourse and the political process.
Cells; Donors; Embryo Research; Embryonic Stem Cells; Embryos; Forms; Law; Research; Stem Cells; In Vitro Fertilization and Embryo Transfer; Genetics, Molecular Biology and Microbiology; Social Control of Human Experimentation; Stem Cell Research; Donation / Procurement of Organs and Tissues; Research on Embryos and Fetuses;
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Porz, Rouven; Bürkli, Peter; Barazzetti, Gaia; Leach Scully, Jackie; Rehmann-Sutter, Christoph (2008-09-20)
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'You don't make genetic test decisions from one day to the next' -- using time to preserve moral space Scully, Jackie Leach; Porz, Rouven; Rehmann-Sutter, Christoph (2007-05)The part played by time in ethics is often taken for granted, yet time is essential to moral decision making. This paper looks at time in ethical decisions about having a genetic test. We use a patient-centred approach, ...