Truth-telling and Turner Syndrome: the importance of diagnostic disclosure
Sutton, Erica J.
Bondy, Carolyn A.
Gollust, Sarah E.
Journal of Pediatrics 2006 January; 148(1): 102-107
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Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions Gollust, Sarah E.; Apse, Kira A.; Fuller, Barbara P.; Miller, Paul Steven; Biesecker, Barbara (2005-01)Because the introduction of genetic testing into clinical medicine and public health creates concerns for the welfare of individuals affected with genetic conditions, those individuals should have a role in policy decisions ...