Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research
Clinical Genetics 2006 May; 69(5): 393-398
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Hull, Sara Chandros; Sharp, Richard R.; Botkin, Jeffrey R.; Brown, Mark; Hughes, Mark; Sugarman, Jeremy; Schwinn, Debra; Sankar, Pamela; Bolcic-Jankovic, Dragana; Clarridge, Brian R.; Wilfond, Benjamin S. (2008-10)It is unclear whether the regulatory distinction between non-identifiable and identifiable information--information used to determine informed consent practices for the use of clinically derived samples for genetic ...
Valle-Mansilla, J Ignacio; Ruiz-Canela, Miguel; Sulmasy, Daniel P (2010-08)This international self-administered survey describes the attitudes of 279 patients, who had previously donated samples, regarding informed consent for future genomic research on donated tissue and explores factors associated ...