Ethical issues arising from the participation of children in genetic research
Diekema, Douglas S.
Journal of Pediatrics 2006 July; 149(1, Supplement): S34-S38
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Beskow, Laura M.; Botkin, Jeffrey R.; Daly, Mary; Juengst, Eric T.; Lehmann, Lisa Soleymani; Merz, Jon F.; Pentz, Rebecca; Press, Nancy A.; Ross, Lainie Friedman; Sugarman, Jeremy; Susswein, Lisa R.; Terry, Sharon F.; Austin, Melissa A.; Burke, Wylie (2004-11-01)
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group. Fabsitz, Richard R.; McGuire, Amy; Sharp, Richard R.; Puggal, Mona; Beskow, Laura M.; Biesecker, Leslie; Bookman, Ebony; Burke, Wylie; Burchard, Esteban Gonzalez; Church, George; Clayton, Ellen Wright; Eckfeldt, John H.; Fernandez, Conrad V.; Fisher, Rebecca; (2010-12-01)In January 2009, the National Heart, Lung, and Blood Institute convened a 28-member multidisciplinary Working Group to update the recommendations of a 2004 National Heart, Lung, and Blood Institute Working Group focused ...