Open sesame. Congress must establish boundaries to protect privacy and promote ethical uses of new genetic information
Forum for Applied Research and Public Policy 2000 Spring; 15(1): 44-48
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A Bill to Define the Circumstances under which DNA Samples may be Collected, Stored, and Analyzed, and Genetic Information May be Collected, Stored, Analyzed, and Disclosed, to Define the Rights of Individuals and Persons with Respect to Genetic Information, to Define the Responsibilities of Persons with Respect to Genetic Information, to Protect Individuals and Families from Genetic Discrimination, to Establish Uniform Rules that Protect Individual Genetic Privacy, and to Establish Effective Mechanisms to Enforce the Rights and Responsibilities Established under this Act United States. Congress. Senate (1997-03-11)