Permanently detained: as the U.K.'s database expands, crimes solved with DNA drop
GeneWatch 2006 November-December; 19(6): 13-18
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Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB). Rubinstein, Yaffa R; Groft, Stephen C; Bartek, Ronald; Brown, Kyle; Christensen, Ronald A; Collier, Elaine; Farber, Amy; Farmer, Jennifer; Ferguson, John H; Forrest, Christopher B; Lockhart, Nicole C; McCurdy, Kate R; Moore, Helen; Pollen, Geraldine B; Ric (2010-09)A movement to create a global patient registry for as many as 7,000 rare diseases was launched at a workshop, "Advancing Rare Disease Research: The Intersection of Patient Registries, Biospecimen Repositories, and Clinical ...
Stuardi, Tracy; Cox, Helen; Torgerson, David J (2011-06)Achieving sample size is imperative to obtaining sufficient power to detect potential effects in health care research, yet many research studies are prone to under-recruitment. Not only does this create problems with power ...