Public opinion, consent and population genetic biobanks
Caulfield, Timothy; Ries, Nola M.
In: Knoppers, Bartha Maria, ed. Genomics and Public Health: Legal and Socio- Ethical Perspectives. Leiden; Boston: Martinus Nijhoff, 2007: 183-195
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Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries. Ries, Nola M.; LeGrandeur, Jane; Caulfield, Timothy (2010)BACKGROUND: Research involving minors has been the subject of much ethical debate. The growing number of longitudinal, pediatric studies that involve genetic research present even more complex challenges to ensure appropriate ...