Patients as public in ethics debates: interpreting the role of patients' organisations in democracy
Nelis, Annemiek; de Vries, Gerard; Hagendijk, Rob
In: Atkinson, Paul; Glasner, Paul; Greenslade, Helen, eds. New Genetics, New Identities. London; New York: Routledge, 2007: 28-43
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Assessing the Public's Views in Research Ethics Controversies: Deliberative Democracy and Bioethics as Natural Allies Kim, Scott Y.H.; Wall, Ian F.; Stanczyk, Aimee; De Vries, Raymond (2009-12)In a liberal democracy, policy decisions regarding ethical controversies, including those in research ethics, should incorporate the opinions of its citizens. Eliciting informed and well-considered ethical opinions can be ...