Concern, pressure and lack of knowledge affect choice of not wanting to know high-risk status.
European Journal of Human Genetics 2007 May; 15(5): 556-562
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Helgesson, Gert; Eriksson, Stefan; Swartling, Ulrica (2007-07)The right not to know personal health-related information has been included in prominent human rights documents and subsequently in national legislation since the middle of the 1990s. Apart from situations where another ...
Parental Authority, Research Interests and Children's Right to Decide in Medical Research -- an Uneasy Tension? Swartling, Ulrica; Helgesson, Gert; Hansson, Mats G.; Ludvigsson, Johnny (2008-06)There is an increased focus on, and evidence of, children's capability to both understand and make decisions about issues relating to participation in medical research. At the same time there are divergent ideas of when, ...