Patient organizations as the (un)usual suspects: the biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank
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Mayrhofer, Michaela
Bibliographic Citation
In: Gottweis, Herbert; Petersen, Alan, eds. Biobanks: Governance in Comparative Perspective. Abingdon, Oxon; New York, NY: Routledge, 2008: 71-87
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Iserson, Kenneth V.; Schoeman, Ferdinand (1992-03)This case study highlights the conflict between confidentiality in patient care and the state's interest in protecting abused children. A physician treating a three-year-old girl suspects the parents' account of how she ...