Patient organizations as the (un)usual suspects: the biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank

dc.creator	Mayrhofer, Michaela	en
dc.date.accessioned	2011-07-12T18:21:08Z	en
dc.date.available	2011-07-12T18:21:08Z	en
dc.date.created	2008	en
dc.date.issued	2008	en
dc.identifier	978-0-415-42737-1	en
dc.identifier.bibliographicCitation	In: Gottweis, Herbert; Petersen, Alan, eds. Biobanks: Governance in Comparative Perspective. Abingdon, Oxon; New York, NY: Routledge, 2008: 71-87	en
dc.identifier.uri	http://hdl.handle.net/10822/512043	en
dc.format	Book Chapter	en
dc.language	eng	en
dc.source	311834	en
dc.subject	DNA	en
dc.subject	Organizations	en
dc.subject	Patient Organizations	en
dc.subject.classification	Genetics, Molecular Biology and Microbiology	en
dc.subject.classification	Donation / Procurement of Organs and Tissues	en
dc.subject.classification	Information Science Ethics	en
dc.title	Patient organizations as the (un)usual suspects: the biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank	en
dc.provenance	Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National Human Genome Research Institute	en
dc.provenance	Digital citation migrated from OpenText Livelink Discovery Server database named GenETHX to DSpace collection GenETHX hosted by Georgetown University	en

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