Espera e revelação: a pesquisa com testes preditivos para câncer de mama e a ética
Revista Bioética 2008; 16(2): 241-258
Showing items related by title, author, creator and subject.
Braz, Marlene; Schramm, Fermin Roland (2011-04)This article discusses research in the field of mental health, examining the ethical issues involved and the use of Informed Consent. In order to achieve these objectives two main approaches were used: (1) a brief history ...
Ethical Issues Related to the Access to Orphan Drugs in Brazil: The Case of Mucopolysaccharidosis Type I Boy, Raquel; Schwartz, Ida V D; Krug, Bárbara C; Santana-da-Silva, Luiz C; Steiner, Carlos E; Acosta, Angelina X; Ribeiro, Erlane M; Galera, Marcial F; Leivas, Paulo G C; Braz, Marlene (2011-04)Mucopolysaccharidosis type I (MPS I) is a rare lysosomal storage disorder treated with bone marrow transplantation or enzyme replacement therapy with laronidase, a high-cost orphan drug. Laronidase was approved by the US ...