"You're one of us now": young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)
Duncan, Rony E.
Rogers, John G.
Delatycki, Martin B.
American Journal of Medical Genetics. Part C, Seminars in Medical Genetics 2008 February 15; 148C(1): 47-55
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The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis. Duncan, Rony E; Gillam, Lynn; Savulescu, Julian; Williamson, Robert; Rogers, John G; Delatycki, Martin B (2010-03)Predictive genetic tests for familial adenomatous polyposis (FAP) are routinely offered to young people during early adolescence. While this is not controversial, due to the medical benefit conferred by the test, it is ...