Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease.
Williams, Janet K.
Beglinger, Leigh J.
Hayden, Michael R.
Paulsen, Jane S.
American Journal of Medical Genetics. Part B, Neuropsychiatric Genetics 2008 April 5; 147(3): 320-325
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Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study. Erwin, Cheryl; Williams, Janet K; Juhl, Andrew R; Mengeling, Michelle; Mills, James A; Bombard, Yvonne; Hayden, Michael R; Quaid, Kimberly; Shoulson, Ira; Taylor, Sandra; Paulsen, Jane S; (2010-07)Genetic discrimination-defined as the denial of rights, privileges, or opportunities or other adverse treatment based solely on genetic information (including family history)-is an important concern to patients, healthcare ...
In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International . Williams, Janet K; Erwin, Cheryl; Juhl, Andrew R; Mengeling, Michelle; Bombard, Yvonne; Hayden, Michael R; Quaid, Kimberly; Shoulson, Ira; Taylor, Sandra; Paulsen, Jane S; (2010-09)Genetic discrimination may be experienced in the day-to-day lives of people at risk for Huntington disease (HD), encompassing occurrences in the workplace, when seeking insurance, within social relationships, and during ...
Perceptions of genetic discrimination among peple at risk for Huntington's disease: a cross sectional survey Bombard, Yvonne; Veenstra, Gerry; Friedman, Jan M.; Creighton, Susan; Currie, Lauren; Paulsen, Jane S.; Bottorff, Joan L.; Hayden, Michael R. (2009-06-13)