Whole-genome data not anonymous, challenging assumptions
Science 2008 September 5; 321(5894): 1278
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Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small. Sharp, Richard R (2011-03)As we look to a time when whole-genome sequencing is integrated into patient care, it is possible to anticipate a number of ethical challenges that will need to be addressed. The most intractable of these concern informed ...
Whole-genome association studies for multigenic diseases: ethical dilemmas arising from commercialization--the case of genetic testing for autism. Jordan, Bertrand R; Tsai, Daniel Fu Chang (2010-07)This paper examines some ethical issues arising from whole-genome association studies for multigenic diseases, focusing on the case of autism. Events occurring following the announcement of a genetic test for autism in ...