Whole-genome data not anonymous, challenging assumptions
Science 2008 September 5; 321(5894): 1278
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Callier, Shawneequa (Kennedy Institute of Ethics, 2014-11-21)In this talk, Shawneequa Callier weighs the ethical and legal responsibilities for researchers in relaying unanticipated incidental findings from whole genome sequencing to trial participants. Shawneequa Callier is an ...
Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small. Sharp, Richard R (2011-03)As we look to a time when whole-genome sequencing is integrated into patient care, it is possible to anticipate a number of ethical challenges that will need to be addressed. The most intractable of these concern informed ...